Ralph’s Journey

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Words by Ralph.

There are many things I am proud to have accomplished in my life.  Today, I am proud to add stroke survivor to that list.  March of Dimes Canada helped me get my life back.

My stroke left me feeling like I lost everything in an instant.  I became a guy who could not dress himself. I needed assistance with pretty much everything. I felt helpless, but most of all scared.

Thankfully, I learned about March of Dimes Canada Conductive Education® (CE) Program and all the ways in which they help stroke survivors return to independent life. Having already been in physical therapy for almost two years, I was skeptical as to how much more they could do for me. But participating in their Stroke and Fitness Program, I soon learned that I needed to stop focusing on what I couldn’t do and instead channel my energy into finding solutions to reach my milestones.

It’s been a long journey but one I am proud to have made.  Through MODC I have been clawing back to the point where I now live alone and I can do most of my daily chores independently. With each passing day, I regain more and more of my self-worth and dignity; I am no longer the guy who needs help with everything.

When you suffer a stroke, you lose everything in a matter of seconds, and it takes the rest of your life to gain it back.  March of Dimes Canada taught me if I want it back, I have to work for it.  It’s been three years since my stroke and I plan on working hard every day to get better and live as normal a life as I can.  The only thing that can stop a stroke survivor from getting better is giving up.  I’m not giving up.

I wouldn’t be where I am now without you.  Thank you.

 

If you’d like to help other stroke survivors like Ralph, please visit: https://marchofdimes.akaraisin.com/SpringGivingMay2018

Branden - The Impact of L.I.F.E. for young adults with disabilities

The Impact of L.I.F.E. – Branden

Branden - The Impact of L.I.F.E. for young adults with disabilities

When Branden joined the Learning Independence for Future Empowerment (L.I.F.E.) Mississauga Program, he wanted to learn how to take the MiWay Transit buses independently. Although he was comfortable using TransHelp buses and booking his rides by himself, he desired a method of transportation that did not require a booking process so that he can be more spontaneous and flexible in his outings. His goal was to take the MiWay Transit buses to get to the program instead of using TransHelp. He also wanted to expand his social circle and be more familiar with various places in the community.

L.I.F.E. Program Instructors determined that Branden could work on this goal by participating in the Transit Training component of the L.I.F.E. Program since he wanted to familiarize himself with the public transit system and learn how to plan trips using Google Maps. It was also determined that he would be a good candidate for social outings days as it would give him an opportunity to explore the community by attending various events with the program and spending time with other participants in social settings.

Branden Taking Miway - LIFE M
Branden taking a MiWay Transit bus

During Transit Training, Branden was the first to search directions to the destinations. His attendance was excellent as well. He attended Transit Training for one session and is now comfortable taking MiWay Transit buses independently. He also learned many new routes to his house from the program, as well as directions to various recreational sites in his community. Additionally, he reported having an easier time running errands and going out with friends ever since using the MiWay buses. Branden has been very comfortable using conventional transit to the point that he was able to use the Brampton Züm buses to attend an event on his own!

I learned how to take the bus by myself. I met a new friend Siu Fan…He is my new bestie. I am excited to look for and get a job.

– Branden

Branden reported he has expanded his social circle as he met new friends at the program. He shared that he goes out with those friends outside of program hours especially on the weekends, visiting shopping malls like Square One and watching movies together at the theatre or at one of their houses.

Branden at Sqaure One - LIFE M
Branden at Square One shopping mall in Mississauga

Overall, Branden has increased his community engagement by learning to navigate the public transit system, which allows him to explore his community, and he has met new friends at the program. Branden has also been selected as a candidate for the March of Dimes pre-employment program (PEP), and he will begin attending it in November. There he will begin to work on another area of independence.

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Our goal for Giving Tuesday this year is to raise funds to expand our L.I.F.E. Pilot Program in Calgary so that it runs longer than 2 weeks. It’s the first step towards our overarching goal of bringing the L.I.F.E. Program to empower other young adults with disabilities in other communities across the country! We’ve teamed up with Eric Howk from the band, Portugal. The Man, and Savaria to spread the word. Savaria will also be matching every donation dollar for dollar until Giving Tuesday on November 28. This means your donation will be worth twice as much! Please see our crowdfunding pages below:

If you’d like to donate in CAD ($), please visit: http://bit.ly/IGGLIFE

For our international donors, please visit: http://bit.ly/MODCLIFE17

JAIPAL - The Impact of L.I.F.E. for young adults with disabilities

The impact of L.I.F.E. – Jaipal

JAIPAL - The Impact of L.I.F.E. for young adults with disabilities

Our Learning Independence for Future Empowerment (L.I.F.E.) Program has made a difference for many of its participants. Instead of us telling you the many different ways, we thought it would be best said from the participants and parents. Over the next week, we’ll be sharing testimonials through these blog posts!

Jaipal’s mother, Satpal Dhanjal writes:

“For me this program is amazing! Oh my god! Jaipal especially is really enjoying the program. We were talking earlier as we prepared dinner and he just kept going on and on about the program.

Jaipal (left) LIFE Mississauga participants at Ribfest

Jaipal can’t wait to get going in the morning to avoid being late to the L.I.F.E. program. He gets up, washed and dressed independently to avoid being late. 

To be having this lengthy conversation with my son shows the difference the program has made. My son no longer ignores me, there is no more swearing, he treats me with respect, we have conversations, he seems genuinely interested in me and grateful for the things I do as his parent – I feel appreciated.

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Tomorrow I am meeting with the agency, Mike Bennett Edge, that referred us to the L.I.F.E. program and I can’t wait to discuss how far my boys have come since attending the program.

There is really so much more to say such as how independent my son has become, taking the public transit to all the events L.I.F.E. attends in our community. I have also attended a few of the community events and watched her at work and she is amazing with the participants! They try everything and do many activities. I just can’t say enough.

Thank you!”

Our goal for Giving Tuesday this year is to raise funds to expand our L.I.F.E. Pilot Program in Calgary so that it runs longer than 2 weeks. It’s the first step towards our overarching goal of bringing the L.I.F.E. Program to empower other young adults with disabilities in other communities across the country! We’ve teamed up with Eric Howk from the band, Portugal. The Man, and Savaria to spread the word. Savaria will also be matching every donation dollar for dollar until Giving Tuesday on November 28. This means your donation will be worth twice as much! Please see our crowdfunding pages below:

If you’d like to donate in CAD ($), please visit: http://bit.ly/IGGLIFE

For our international donors, please visit: http://bit.ly/MODCLIFE17

Malic, the superhero!

Words by William Shatner

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Malic was born in Dubai and was diagnosed with cerebral palsy as an infant when his parents noticed he wasn’t meeting important developmental milestones. They immediately found physiotherapy for him, and continued to maintain a similar structure for him at home, reinforcing what he was learning in his therapy sessions. Though steady, his progress was slow.

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Malic at the museum!

Malic’s parents had heard of Conductive Education® (CE), but it wasn’t offered in Dubai. After the family moved back to Canada, they signed Malic up for March of Dimes Canada’s Conductive Education Summer Camp where they learned that the sky was the limit for this bright and engaging young boy!

 

After their first assessment, the family walked away feeling hope and excitement! The great staff at March of Dimes Canada knows that it is important not only for Malic to believe that he can do anything and everything he wants to do, but that his family believes it too! Malic is continually given challenges that are outside his comfort zone, and he rises to the occasion every time! He is always quick to say “I can do it myself…”

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Those are words we LOVE to hear at March of Dimes Canada. Those words are why we do what we do.

He loves superheroes, but to me, Malic is the superhero!

Malic’s accomplishments are all 100% his own. He loves to dance, listen to music and play video games just like any other boy. He loves superheroes, but to me, Malic is the superhero! The love, compassion and determination he shows every day of his life exemplifies the March of Dimes spirit.

People like Malic are why I support March of Dimes Canada. I hope Malic’s story will inspire you as it has inspired me.

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I am also pleased to remind you that March of Dimes Canada has been accredited by Imagine Canada’s Standards Program for excellence in financial accountability and transparency, fundraising and governance. Learn more about our Conductive Education® Program by visiting the following link: http://bit.ly/ModcCEP

Madison. ".. it wasn't long before she was able to start standing on her own." - New Community Blog Post!

Let’s Talk About: Madison!

Madison. ".. it wasn't long before she was able to start standing on her own." - New Community Blog Post!

Last summer, we met little Madison. In just one short year, she has opened the doors to a world of independence with hard work, and your commitment to help!

Madison’s family found March of Dimes Canada’s Conductive Education® (CE) Program after discovering that Madison wasn’t meeting her developmental milestones as a baby. Her parents worried that she would be facing a lifetime of frustration and challenges. But, because CE is one of the only programs available to very young children in Canada, it was a perfect opportunity for her to start facing those challenges with a supportive team right beside her.

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In her first CE session, she learned to sit independently! It wasn’t long before she was able to start standing on her own, and learning to walk with her walker.

Now, a full year later, Madison is a girl on the move! She’s a bright and confident child who loves learning how to jump and how to use her quad canes. She is working on stamina, core strength and balance, controlled breathing and purposeful movements of her body. She is able to figure out for herself how to change positions and stand independently. Most importantly, she has found her voice – she advocates for herself, she makes sure she is heard!

Check out this video explaining our Conductive Education Program, which also features Madison!

She swims! She plays with her friends! She rides her horse! She can conquer ANYTHING that life puts in front of her. Today, she takes charge of her world like the little fighter she is! Way to go Madison!

CE® is also one of our donor funded programs, partly funded by our Door-to-Door Program, which runs from November to late March. If you’re interested in volunteering as a canvasser for this year or the following, please email us at info@marchofdimes.ca with “Door-2-Door Volunteer” in the subject header!

 

"Maida de Stein has been canvassing for MODC for over 2 decades!"

Let’s Talk About: Maida De Stein!

"Maida de Stein has been canvassing for MODC for over 2 decades!"

Written by Tina Siegel

Maida de Stein has been canvassing for March of Dimes Canada for over 2 decades, just like her mother used to do, and she has it down to a science.

Every year, Maida gets out her lists of phone numbers and addresses, and calls ahead to ask for pledges. She keeps careful records, then only goes to the homes of people who have agreed to donate. It’s quick and efficient.

That’s one secret to Maida’s success: organization.

‘But it’s a chance to catch up sometimes, too,’ she adds. ‘I know everyone on my route. I have a personal relationship with them.’

Maida goes beyond her route, as well. She approaches relatives, friends, members of her book club and tai chi class – anyone who might be willing to donate, or who has donated in the past. This often takes her well beyond her assigned canvass.

That’s another secret: personal relationships.

Maida also gives as much as she gets. She’ll often propose an exchange – you donate this much to my charity, and I’ll donate the same amount to yours. Everyone wins.

And that’s the last secret to Maida’s success: mutual benefit.

The result: Maida is one of MODC’s most successful canvassers, raising about $1,500 every year for a total of nearly $12,000 since 2002. She’s the first to acknowledge that it’s hard work, but also that it’s worth it.

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Every dollar Maida collects goes straight towards supporting kids like Zachary (see photo), who are benefitting from MODC’s innovative Conductive Education® (CE) program. CE is designed to help people with neurological motor disorders like cerebral palsy or Parkinson’s to gain mobility and more independence. http://bit.ly/ModcCEP

‘It’s a tough job,’ she says, ‘but very rewarding.’

If you’re interested in volunteering as a canvasser for this year or the following, please email us at info@marchofdimes.ca with “Door-2-Door Volunteer” in the subject header!

Andrea Luciani - picture of her smiling - "..I like to use the word ABLE when it comes to my progress."

Let’s Hear From: Andrea Luciani!

Andrea Luciani - picture of her smiling - "..I like to use the word ABLE when it comes to my progress."
Written by Andrea Luciani

I was born with cerebral palsy and I assumed from a young age that my parents would always do everything for me. I never thought that someday I would grow up and live an independent life, despite my disability.

But, thanks to March of Dimes’ Conductive Education® (CE) Program (http://bit.ly/ModcCEP), I have been able to turn my disabilities into abilities! I’ve been a part of the CE® Program since I was 6 years old. I am now 23 years old and the climb  hasn’t been easy. Cerebral palsy has affected all aspects of my life, including my mobility, coordination, posture, and my ability to do daily living activities independently.

Today, I like to use the word ABLE when it comes to my progress. I am able to sit down and get up independently. I am able to walk using single point canes. I am able to get from room to room on my own in my house. Every day, I focus on what I am able to do!
The CE® Program has been instrumental in my life.

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March of Dimes Canada’s CE® Program is designed specifically for people with neurological motor disorders and offers an alternative group setting approach to rehabilitation. CE® didn’t just give me tools to help my mobility; it also provided me with a voice. Instead of my parents or others speaking on my behalf, I learned to advocate for my own needs. I may need special accommodations to aid in that process but I make sure I am heard!

Thank you! Because of your generosity, and my wonderful teachers at CE®, I have grit! I have learned to never give up, keep trying, keep learning new ways to do something, and always strive to conquer! If wonderful programs like CE® did not exist due to lack of funding, many of my accomplishments would not have been possible. You have literally changed my life! I hope that CE® can continue to have a profound and lasting effect on every participant’s life.

Thank you for taking the time to read my letter.

CE® is also one of our donor funded programs, partly funded by our Door-to-Door Program, which runs from November to late March. If you’re interested in volunteering as a canvasser for this year or the following, please email us at info@marchofdimes.ca with “Door-2-Door Volunteer” in the subject header!