After Stroke: Christopher’s Experience

"I am very thankful for those that support people like me, and our families, who are living with a stroke."

“I am very thankful for those that support people like me, and our families, who are living with a stroke,” says Christopher Munn.

Christopher Munn was on his Tuesday evening 10K run when he began to experience having a stroke. He suddenly saw flashes in his left eye and had a sharp headache. But when he went to the hospital, they told him it was probably a migraine. He’d never had a migraine before. Two days later, during an office meeting, he couldn’t move his right side.

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“Others noticed. I couldn’t talk. I tried but couldn’t get anyone to understand,” he remembers.

Chris was nothing if not active and healthy before his stroke. He regularly ran with the Owen Sound Running Club, spent time canoeing or skiing outdoors, attended book club meetings and renovated parts of his home.

But the stroke changed all that, greatly impairing his mobility, speech and lifestyle.

“The first night in the hospital after my stroke, I needed to go to the washroom,” he explains. “I wasn’t used to my leg and arm not working. I tried to get up and slid to the floor.”

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Christopher with a fish during a fishing activity at Aphasia Camp

March of Dimes Canada has helped him get back on his feet, offering support programs and subsidizing what his benefits do not cover.

It took seven weeks of rehab to be able to walk with a cane, and he needs ongoing physio three times a week to keep him mobile. He also joined the MODC Aphasia & Communications Disabilities Program (ACDP) for weekly speech therapy, and attends the After Stroke Support Group once a month to help integrate him back into a normal life.

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Chris and his wife during an adaptable bike ride at aphasia camp in St. George, 2016.

“[March of Dimes Canada] staff and volunteers are wonderful – so encouraging and supportive,” he says.

Today, Chris is adapting to a new life. “I miss jogging and hiking. I go for walks,” he explains. “I am trying to adjust to doing things differently.” It takes a great deal of effort, but he’s able to complete small tasks around the house, have conversations, and read books. He’s also taken up new hobbies, including art and dance, and is optimistic that with continued support, he’ll one day be able to bike again.

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Chris titles this “The Healing Power of Nature”

In Canada, over 400,000 people like Christopher have survived a stroke. We are helping families like Christopher’s by offering support, rehabilitation services, education and caregiver support through our nationwide After Stroke program. Visit the After Stroke website at afterstroke.marchofdimes.ca for more information and resources.

Ralph’s Journey

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Words by Ralph.

There are many things I am proud to have accomplished in my life.  Today, I am proud to add stroke survivor to that list.  March of Dimes Canada helped me get my life back.

My stroke left me feeling like I lost everything in an instant.  I became a guy who could not dress himself. I needed assistance with pretty much everything. I felt helpless, but most of all scared.

Thankfully, I learned about March of Dimes Canada Conductive Education® (CE) Program and all the ways in which they help stroke survivors return to independent life. Having already been in physical therapy for almost two years, I was skeptical as to how much more they could do for me. But participating in their Stroke and Fitness Program, I soon learned that I needed to stop focusing on what I couldn’t do and instead channel my energy into finding solutions to reach my milestones.

It’s been a long journey but one I am proud to have made.  Through MODC I have been clawing back to the point where I now live alone and I can do most of my daily chores independently. With each passing day, I regain more and more of my self-worth and dignity; I am no longer the guy who needs help with everything.

When you suffer a stroke, you lose everything in a matter of seconds, and it takes the rest of your life to gain it back.  March of Dimes Canada taught me if I want it back, I have to work for it.  It’s been three years since my stroke and I plan on working hard every day to get better and live as normal a life as I can.  The only thing that can stop a stroke survivor from getting better is giving up.  I’m not giving up.

I wouldn’t be where I am now without you.  Thank you.

 

If you’d like to help other stroke survivors like Ralph, please visit: https://marchofdimes.akaraisin.com/SpringGivingMay2018

Volunteer Spotlight: Joan Winter

Volunteer Spotlight: January 2018

Volunteer Spotlight: Joan Winter

Volunteers are so important to March of Dimes Canada and we are so appreciative and thankful for their continued support and work they do for the organization. It’s true – we really cannot do what we do without them!

We thought it would be a fun way to get to know some of our volunteers by spotlighting 12 this year; one a month and with a few fun questions. Check out Joan, our January Spotlight!

January Volunteer Spotlight

Name: Joan Winter

Volunteer Position:  Chairperson and Peers Fostering Hope Volunteer

How long have you been a MODC volunteer?  7 years

What is your favorite part about volunteering with MODC?  Being able to express that there is always hope and that people need to be determined towards their recovery, which will be rewarded.

What are 3 adjectives use would use to describe yourself?  Determined, dedicated and challenged.

What is your favorite hobby?  Grandchildren is number 1, Reading, and Toast Masters.

What is your favorite TV show?  The Young and the Restless and Big Bang Theory

Erica M. nominated Joan for a volunteer spotlight. Here is why she nominated her:

We have the pleasure of working with wonderful people who donate their time to this organization every day. I wanted to highlight Joan Winter as she is determined to beat the odds. She is her own advocate and works hard towards her recovery every single day. She doesn’t let disability become a barrier. She advocates for Tai-Chi and Toast Masters; two community programs that were instrumental in her recovery. These programs have given her both focus and balance. She doesn’t let stroke define her. She would say “that being the Chairperson for the Oshawa Stroke Support Group has made her stronger and has given her direction” she would also say that “if you think you can or can’t, you are right”.

In addition to being the Chairperson for the Oshawa Stroke Support group she is an active Peers Fostering Hope Volunteer, spending her free time giving hope to people who have newly experienced a stroke. Lastly, she also volunteers with the Living with Stroke program running it twice a year. She is truly remarkable and unstoppable! We want to thank Joan Winter for her time and positive energy towards helping other stroke survivors and caregivers realize that there is life after stroke.

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If you’d like to learn more about March of Dimes Canada’s volunteering opportunities, please visit this landing page from their site: http://bit.ly/MODCVol

Malic, the superhero!

Words by William Shatner

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Malic was born in Dubai and was diagnosed with cerebral palsy as an infant when his parents noticed he wasn’t meeting important developmental milestones. They immediately found physiotherapy for him, and continued to maintain a similar structure for him at home, reinforcing what he was learning in his therapy sessions. Though steady, his progress was slow.

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Malic at the museum!

Malic’s parents had heard of Conductive Education® (CE), but it wasn’t offered in Dubai. After the family moved back to Canada, they signed Malic up for March of Dimes Canada’s Conductive Education Summer Camp where they learned that the sky was the limit for this bright and engaging young boy!

 

After their first assessment, the family walked away feeling hope and excitement! The great staff at March of Dimes Canada knows that it is important not only for Malic to believe that he can do anything and everything he wants to do, but that his family believes it too! Malic is continually given challenges that are outside his comfort zone, and he rises to the occasion every time! He is always quick to say “I can do it myself…”

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Those are words we LOVE to hear at March of Dimes Canada. Those words are why we do what we do.

He loves superheroes, but to me, Malic is the superhero!

Malic’s accomplishments are all 100% his own. He loves to dance, listen to music and play video games just like any other boy. He loves superheroes, but to me, Malic is the superhero! The love, compassion and determination he shows every day of his life exemplifies the March of Dimes spirit.

People like Malic are why I support March of Dimes Canada. I hope Malic’s story will inspire you as it has inspired me.

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I am also pleased to remind you that March of Dimes Canada has been accredited by Imagine Canada’s Standards Program for excellence in financial accountability and transparency, fundraising and governance. Learn more about our Conductive Education® Program by visiting the following link: http://bit.ly/ModcCEP

Madison. ".. it wasn't long before she was able to start standing on her own." - New Community Blog Post!

Let’s Talk About: Madison!

Madison. ".. it wasn't long before she was able to start standing on her own." - New Community Blog Post!

Last summer, we met little Madison. In just one short year, she has opened the doors to a world of independence with hard work, and your commitment to help!

Madison’s family found March of Dimes Canada’s Conductive Education® (CE) Program after discovering that Madison wasn’t meeting her developmental milestones as a baby. Her parents worried that she would be facing a lifetime of frustration and challenges. But, because CE is one of the only programs available to very young children in Canada, it was a perfect opportunity for her to start facing those challenges with a supportive team right beside her.

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In her first CE session, she learned to sit independently! It wasn’t long before she was able to start standing on her own, and learning to walk with her walker.

Now, a full year later, Madison is a girl on the move! She’s a bright and confident child who loves learning how to jump and how to use her quad canes. She is working on stamina, core strength and balance, controlled breathing and purposeful movements of her body. She is able to figure out for herself how to change positions and stand independently. Most importantly, she has found her voice – she advocates for herself, she makes sure she is heard!

Check out this video explaining our Conductive Education Program, which also features Madison!

She swims! She plays with her friends! She rides her horse! She can conquer ANYTHING that life puts in front of her. Today, she takes charge of her world like the little fighter she is! Way to go Madison!

CE® is also one of our donor funded programs, partly funded by our Door-to-Door Program, which runs from November to late March. If you’re interested in volunteering as a canvasser for this year or the following, please email us at info@marchofdimes.ca with “Door-2-Door Volunteer” in the subject header!